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      Asociación Conquistando Escalones

      Asociación Conquistando Escalones

      Villarreal

      La Asociación Conquistando Escalones agrupa a los afectados (y entorno) de una enfermedad muscular, hereditaria y degenerativa que se llama Distrofia Muscular de Cinturas 1F/D2. Hace unos años se descubrió que la mutación que nos la causa nos hace inmunes al VIH. Y gracias a eso, centros de todo el mundo (incluidos en España La Fe, Universidad de Valencia, el Instituto Carlos III, entre otros) buscan tratamientos para lo nuestro que a su vez ayuden a millones. La parte "mala" de esto es que somos los pacientes los que tenemos que buscar la financiación. Creamos eventos, campañas y contenido para conseguir visibilizar y recaudar.

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