Join Biel's tribe!
Please contribute and share the campaign! Help us keep going and reach a lot of people!
Biel's hips are at high risk of luxation.
After a deep research, we have found a preventive surgery that is performed in few hospitals around the world and that is very expensive. We need to fundraise a total of 35.000€ for the following:
Orthopedic Material for the recovery phase.
Against all medical prognosis, after suffering an asphyxia during birth, Biel survived. He fought to stay in this world. A week after his birth, he was diagnosed with Hypoxic Ischemic Encephalopathy (HIE). You can read his history at www.bielchangpuigdomenech.com
With the collaboration of several musicians, we recorded the album "We are Biel", which together with artistic photography series and other objects will reward those who join the tribe to help him keep learning.
"WE ARE BIEL" ALBUM
Two years ago Biel's uncle, Carles Portella, had the idea of making a music album to fund the Jeremy Krauss Approach learning lessons Biel was receiving in Germany. But the project, due to many circumstances, was stopped.
Faced with the current situation of Biel's hips and the high cost of the found surgery, Carles stared at us and said: "now we really must make the album a reality!" After tears drying and deep breathing we started the project with the help of high artists of high category, sensitivity and solidarity.
We are Biel is an album born from the solidarity that we all have. A record that while listening it surrounds you with life, freshness, joy, struggle. It gives voice to Biel, a child with cerebral palsy, non verbal, but no less musical. The instrumental composition of the main theme is full of symbology. Biel's lack of oxygen at birth, represented by air flutes, become the struggle, a strong child, a warrior, a hero. The melodic flutes symbolize Biel's accompaniment of family, friends and all those have been linked with him at some point. The choir represent us all; symbolizes the solidarity of the world.
This project couldn't have been achieved without the unconditional, supportive and loving help of the musicians and professionals who have collaborated and the studio team who offered the space, time and experience for recording and editing the album.
*Coordinator & Director: Carles Portella Puigdomènech
BIEL TOTE BAG
On a trip in Denmark we made this bag. It had great success between family and friends. Everybody loved it. Those who know Biel immediately recognize his profile. Isn't it beautiful?
The baobab is a sacred tree in Africa, a source of myth, a medicine for the body and the soul. Beginning to draw them, evoking an ancient memory more than a remnant of a picture, the fractal shape appeared as the repetition of a pattern, very present in nature, never equal to itself. This is how life reveals (and rebels) that nothing is completely defined and that variations in shape, as the yearning for freedom, go under your skin and touches the bones.
In the Anatobaobabs series the fractal medicine shows in the most intimate way, the structure that holds us and moves us. Nature grows in fugue and life is curious, tender, rebel and heals itself.
This series is formed by three illustrations: Pelvis, Hip and Vertebra
The reward is an impression to be chosen from the three drawings. Once the campaign is over, you would be able to choose which one you like by completing a form we will send you.
*Author: Mar Álvarez Castañé
1 print to choose
Size: Pelvis (45x30cm) / Hip (50x30cm) / Vertebra (22x30cm)*
PHOTOGRAPHIC SERIES "BIEL'S WORLD"
Taking photographs that spoke of Biel, without making portraits of him (something impossible since we have the Atlantic in between) took me to know him through a different approach, to feel and get involved with him without knowing who is he and what is his condition. Biel's world is the result of our meeting beyond the seas.
Biel lives in a world very different from ours. Where any of us would suffer, he builds, builds bridges, lifts towers, makes a springboard to feel the wind in his crazy hair curls, to look beyond all borders...
This child reminds you that life is beautiful, that you can swim as slow as a turtle and still enjoy the same sea. You can choose between being captive or brave, between surrender or moving forward and, in the meantime, learn from every step in the journey and fight with your sight far beyond your limits; every labyrinth has its own way out.
*Author: María Julia Baccino
6 black&white photographies
PHOTOGRAPHIC SERIES "SOUL TO THE AIR"
Inspired by the origins of dance, Judith carried out this photographic project.
Sould to the Air: "Dance has always belonged to humanity as a form of expression and communication, both with other humans and with the forces of nature. Connecting with the gods, keeping evil spirits away. Spirituality that allows us to access something beyond our earthly vision. Its essential element, the rhythm, is born from breathing, heartbeat and it is nourished by our soul".
*Author: Judith Puigdomènech Portella
4 black&white photographies
PHOTOGRAPHIC SERIES "THE IMPOSSIBLE"
Fatherhood alongside the profession of photographer and cameraman has been converting Jorge into an obsessed with moving photography. This Biel series is a form of rebellion against the impossible, against uncertainty and the dark. Movement is life and water is food and nutrient of happiness.
*Author: Jorge Chang Vásquez
4 black&white photographies
What became Biel's logo is a very special photography made with a technique that few photographers in the world use. This photography was made by Ricardo Guixà, our artistic professor since 2002.
In the following video, produced and directed by Jorge, you can see the spectacular process.
*Author: Ricardo Guixà
WHO WE ARE
We were a vital couple and eager to do things, we loved to travel and never did things the easy way; difficulty was beautiful and fun. We were really looking forward to starting a family. In 2013, during a trip to Sri Lanka, we lost our daughter Greta in the third month of pregnancy. After a year of intense grieving we decided to keep trying to become parents. And Biel arrived, with a huge trauma at birth, with very little expectation of survival or with a very dark prognosis of life. And Biel decided to stay in this world to enjoy life and its way through it.
Now we are a family that continues to travel a lot to enjoy and learn what lies beyond, that continues to face challenges and projects that are not easy at all. We live the present intensely and learn the three together. Despite the bad times, we always shake fears away, fight, recompose, and smile.
NEVER GIVE UP
DO NOT PUT LIMITS
LIVING THE PRESENT
LOVE EACH OTHER
WHAT WILL WE BE ABLE TO DO WITH YOUR HELP?
Last summer Biel was learning to bear weight on his feet with the Jeremy Krauss Approach learning method.
Due to his hips condition we had to make a pause and investigate how to help him. With your contributions we will be able to travel to the country where the surgery will be performed, face the costs of the surgery, hospital staff and orthopedic materials for the recovery phase.
Once the campaign is over, we'll edit all the rewards. We estimate that, at the latest, you will receive your reward in May 2020. However, as the surgery date is still not scheduled, the calendar may be altered if we need to travel abroad to accompany Biel in this intervention. We apologise in advance if that happens and we assure you that we will do our best to delegate tasks, if necessary, to meet the planned calendar.